xhac ([info]xhac) wrote,
@ 2007-11-15 21:53:00
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Sit still or burn
I had my first radiation session yesterday. What a freaking nightmare. Being the first one, It lasted longer than the rest, including a planning session I had previously which was described to me as "about the same as the real deal". My pain control has failed me completely and it's only a few positions that I can hold more that two minutes. The "getting nuked" position wasn't one of them, let me tell you.


After the first 15 minutes of the 30m process I had a steadily growing pain in my leg, started sweating and became overall very agitated. I've been in similar situations many times already. As you might recall, I had to stop my last MRI because of the pain. Difference is, in an MRI if you move to relieve the pain you just ruin the scans. If you move during a radiation session you fry your penis or your colon or some other innocent organ. A (male) nurse had already tucked my genitalia in an appropriate position (talk about full service) and I wouldn't want to mess with that.

To make a not that long story, shorter: I had to stop and take a break, which consisted of lifting my leg up at the knee for 30 seconds (I was down on my stomach to take the radiation), which was absolutely wonderful while it lasted. Afterward they had to set me up at the correct spot again (I did my genitalia myself this time) and continue.

I can't wait for the rest of my sessions.

Other than that I have a constant bitching pain which doesn't go away even if I drug myself with quadruple the original dosage they prescribed for me. There is just this spot, with me being on my stomach with my right leg forming an equilateral triangle on the pelvis the foot and the knee, which just might dampen the pain for 10-15 minutes, which gives you just the right amount of time to sleep. If you miss the window, or wake up, I think I have perfected a routine (which includes getting up, sitting and then taking various weird positions on the bed) that allows you to reset the timer and try to sleep again. Special.

In other special news, I thing the hair-falling phase of my last chemo has kicked in. I haven't shaved since I left Greece since my electrical trimmer hasn't got the right socket. As a result I have a slight non-even shade for a beard which might not look like much but it carries enough hair to weird you out when you see it on a pillow. Similarly with the hair but in much lesser extent.


PS: FYI my bum is not glowing (yet)

Mood: radiated



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[info]dimitra
2007-11-16 10:45 am UTC (link)
I am so sorry you have to go through this.
It is so unfair and undeserved and horrific... And I am truly amazed by your patience.

As for the hair, I understand the frustration but -- it will grow back, I've seen it happen. And, anyway, I always thought you looked cuter without a beard :-) Now, get yourself a socket adaptor. They stink at ebay (hoho -- σ'άρεσε αυτό το direct translation???)

Would it be ok to ring at the weekend?

Hang in there pal,
D.

PS Thank you for the glowing update!!

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[info]xhac
2007-11-18 09:23 pm UTC (link)
Did you know that hair that fall from radiation don't grow back? Semi-hairless butt.

I also got my skype on.

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[info]dimitra
2007-11-18 09:50 pm UTC (link)
excellent re: skype, i'm trying to call you on skype but it says you are offline.
i also seem to have two profiles (!?) -- but the one that is operative is the dimitra.nassimpian - not dnassib - if you want to buzz me.


a semi-hairless butt is a GOOD side-effect!

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(Anonymous)
2007-11-16 01:55 pm UTC (link)
I was expecting better news while I was waiting for your update, but hey, don't let the pain rule your mood, you're strong enough to encounter it.

You'll manage to evolve your pain relieving techniques soon, isn't there any physiotherapist or any other doctor specialized in how to manage your pain that could help you on that?

so they're trying to radiate a specific part in a specific depth under the skin? I wonder how is it possible to direct the radiation in such a narrow way that will not fry anything else by mistake.

Paris


p.s :I really hope the male nurse didnt touch you in a weird way :-P

p.s 2:I wish next update is going to be a happy one

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[info]xhac
2007-11-18 09:26 pm UTC (link)
There is a machine that can rotate 360o and they radiate for about 1m from 14 different locations. that could work

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genitalia manipulation: straight ahead
(Anonymous)
2007-11-17 09:38 am UTC (link)
well, messing around with your genitalia should be something really disturbing... Not that the pain is less unbearable... By no means... But, having someone positioning your willie should be done on a bed (ok, this is not mandatory, depending on one's preferences) by females (ok-ok, this is not mandatory as well, but I am talking from my point of view) looking exceptionally beautiful (I hope we all agree on this). And, most importantly, there is only one place where It should go (and I am not talking about a little bit to the left or right): Straight ahead...

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Keep it up
[info]cdoulig
2007-11-17 11:55 am UTC (link)
Antwnh eimaste panta konta sou kai as mas xwrizoun oi wkeanoi. Kalh dunamh apo th 208, kai as xanomaste kata kairous. Diabazeis akomh email? Se poio account?

CD

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(Anonymous)
2007-11-19 01:40 pm UTC (link)
My dear friend even if ITT... I know you can do it... Keep the faith, I for sure keep the faith in you!

Always keep in mind that my thoughts are full of wishes for your quick return home. As healthy as the last time I saw you!

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