xhac (![[info]](http://p-stat.livejournal.com/img/userinfo.gif){kind=small} xhac) wrote,@ 2007-12-07 20:37:00 |
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cool rider
I have been living in a hotel for the past few days. The culprit: snow. There are about 15 steps that I have to tackle to get in and out of the house where I live and them there are some 10m of uncovered road area to get to my ride [1]. If you fill that up with snow/ice it can really be a death trap. I had the misfortune to land one of my crutches on a piece of ice the other day and it wasn't pretty. As a precaution, we moved to a hotel for the duration of snowfall. There was internet access (curiously not wireless) but I didn't bring my laptop because it was just one more thing to carry (especially on a very complicated route the last day where we hop from building to building with all our stuff trailing).
Anyway, that's why I haven't been in touch for so long.
I have 8-10 more radiation sessions to go. Thankfully I switched back from twice a day to once a day treatments. It seemed that between the long rides and the waiting (and the eating) it was the only thing did all day. The old twice a day treatments where stronger than the once a day ones (when you add both together) by 30% but they were less focused. I remember that they took several minutes to position me before treatment on the once/d regime with people tugging and prodding and shoving and stuff. Lately with the twice/d they just throw me in there, give me a little push and "I'm perfect". So I guess once/d is using a smaller dose but it all goes to the tumor.
The pain is a bit better, but the huge thing sticking out from my right pelvis hasn't gotten any smaller. It seems that every time I see my doctor, a very stressful chinese woman, she has a different explanation: "it's too soon yet", "it's probably dead and we're seeing scar tissue". Today she told me that it may not go away for years: "I'm pretty sure it won't stay there forever". That's entertaining. Overall she's optimistic though, so what can you say.
For the guys that e-mail me about not seeing me at jabber/skype, I have to say that there is not really a position in which I can use the computer for a long period of time (i.e. more that 3m). You can only roll around for that much time. So I'm offline and do some hit and runs to answer e-mails and write some blog entry.
[1] I'm actually using a wonderful service called "The Ride" which helps disabled and senior citizens get around for $2 per person. You just call them the day before about where you're going and what time you need to be there and they just show up and get you there. It took three weeks for me to get accepted but in a rare demonstration of perfect timing, I got my first ride on the day I switched to twice a day. They use minibuses and other people's rides can interfere with yours (we had a ride last 1:45 with several pickups/drop offs before we reached our destination). Also some times they can be horribly late. You get what you pay for I guess but it has been a life (/money) saver.
I have been living in a hotel for the past few days. The culprit: snow. There are about 15 steps that I have to tackle to get in and out of the house where I live and them there are some 10m of uncovered road area to get to my ride [1]. If you fill that up with snow/ice it can really be a death trap. I had the misfortune to land one of my crutches on a piece of ice the other day and it wasn't pretty. As a precaution, we moved to a hotel for the duration of snowfall. There was internet access (curiously not wireless) but I didn't bring my laptop because it was just one more thing to carry (especially on a very complicated route the last day where we hop from building to building with all our stuff trailing).
Anyway, that's why I haven't been in touch for so long.
I have 8-10 more radiation sessions to go. Thankfully I switched back from twice a day to once a day treatments. It seemed that between the long rides and the waiting (and the eating) it was the only thing did all day. The old twice a day treatments where stronger than the once a day ones (when you add both together) by 30% but they were less focused. I remember that they took several minutes to position me before treatment on the once/d regime with people tugging and prodding and shoving and stuff. Lately with the twice/d they just throw me in there, give me a little push and "I'm perfect". So I guess once/d is using a smaller dose but it all goes to the tumor.
The pain is a bit better, but the huge thing sticking out from my right pelvis hasn't gotten any smaller. It seems that every time I see my doctor, a very stressful chinese woman, she has a different explanation: "it's too soon yet", "it's probably dead and we're seeing scar tissue". Today she told me that it may not go away for years: "I'm pretty sure it won't stay there forever". That's entertaining. Overall she's optimistic though, so what can you say.
For the guys that e-mail me about not seeing me at jabber/skype, I have to say that there is not really a position in which I can use the computer for a long period of time (i.e. more that 3m). You can only roll around for that much time. So I'm offline and do some hit and runs to answer e-mails and write some blog entry.
[1] I'm actually using a wonderful service called "The Ride" which helps disabled and senior citizens get around for $2 per person. You just call them the day before about where you're going and what time you need to be there and they just show up and get you there. It took three weeks for me to get accepted but in a rare demonstration of perfect timing, I got my first ride on the day I switched to twice a day. They use minibuses and other people's rides can interfere with yours (we had a ride last 1:45 with several pickups/drop offs before we reached our destination). Also some times they can be horribly late. You get what you pay for I guess but it has been a life (/money) saver.
Mood: expectant
